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Artdoc rating
Butterfly syndrome or epidermolysis bullosa is a severe genetic disease characterized by high skin vulnerability. According to statistics, children with this disease do not live past the age of three. Nikita Zhikharev is 27 years old. He lives and works in Moscow. He has butterfly syndrome, and every day is like a new challenge for him.
Authors
Film crew
- Director
- Maria Gubanova
- Screen writer
- Maria Gubanova
- Operator
- Maria Gubanova
- Producer
- Maria Gubanova
- Composer
- Evgeny Solovyov
- Sound producer
- Maria Gubanova
MOVIE ABOUT
- Theme
- Medicine, People with special needs
- Country
- Russia
- Languages
- Russian
Tags
сила воли
жизнь
инвалид
генетика